20 thoughts on “A Different Spot, Please.

  1. Unhappily, it is Starman’s favourite thing to do when trying to keep my attitude in check. Always around ten on the same spot, then the other side and a repeat. It doesn’t matter how many times I tell him “That’s why I end up with bruises!”, he says it is the only way to make me listen. But I tell him “How can I listen when I’m yelling blue murder!” I just thank the heavens that I don’t get many “attitude adjustments”. Although – perhaps that’s why!

    Hope things are positive for you. Sending you lots of reinforcing hugs and prayers for your daughter.

    Ami

    • Thanks, Ami! We’re hanging in. We have to do another 2 cycles of chemo, which is the pits. BUT: we are lucky there’s treatment, right? And it’s close by. Insurance helps. Friends are great support. Total strangers across the county are praying and beaming positive energy our way. So-we’re fortunate poeple in so many many ways-and you are part of that-so Blessed be-from my heart.
      saoirse

    • I know it’s a really really good idea to keep that thought to myself. But it is HARD-so I said it here-which is amnesty territory as far as I’m concerned 🙂

  2. And while they are finding the exact same spot over and over do you ever think, “And I wanted this lifestyle?” LOL!
    Julie

  3. Hi, Saoirse. I’m sort of making blog rounds and wanted to let you know I’d been here and read back a few months. I’ll pray for your daughter and send healing energy her way.

    I understand a little of what you’ve been going through. Worry, shock, disbelief, fear, anxiety, urgency, frustration, helplessness, injustice, sacrifice, hope on a level previously unknown, love so much it hurts to touch all of it at once.

    I’ve been so fortunate that I’ve only had to ride that emotional roller coaster over the top a couple times with my children, and never longer than a few months until the worst prognosis was changed to a much better one. The first time, after a serious repetitive illness and eventual emergency hospitalization of my middle daughter, they never determined what was wrong and she eventually regained her health. That ride sucked.

    Now, with my youngest daughter, I am on the mostly relieved and hopeful road, just waiting while they continue periodic monitoring of her disease/disorder. Last December, I was told it would be surgery and follow-up treatment for unknown duration and type. Thank God for second opinions and experienced specialists. It isn’t what they first believed it to be. It is still a serious condition, but hers is relatively mild and sometimes kids outgrow it on their own.

    So, I only know from experience a little of your feelings. Remember to take good care of yourself through this. I know you’re aware the emotional stress can wear you out and make you ill. I know it’s hard to take good care of yourself without feeling guilty for taking the time away from everything else. It’s hard not to feel badly for enjoying yourself when a loved one cannot do what she likes to do. Do it anyway. It’s necessary, for you and for her. I learned this the hard way.

    I didn’t take care of myself as I should have during some other horrible happenings prior to my daughter’s diagnosis, and I think my body was simply waiting for one more thing before it knocked me off my feet for months. I’m still so tired, physically and emotionally. I hate not feeling like myself, but it is helping to “act” more like myself even when I don’t feel it. Speaking of which, I need to go act like myself vacuuming the carpets and starting dinner. I already pretended I like cleaning the toilet and doing laundry again. 😉

    I can’t recall if I’ve commented on your blog before. I know I meant to many times. I was wiggy about the email thing until I got my official Irishey identity. Anyway, just letting you know I was back over here again, and I’ll keep thinking strong, healthy, positive thoughts for you and your daughter. Big hugs…

    Irishey

    • Thanks so much. I know of course, that I can’t possibly be the only person to feel this way, live thru this–but sometimes, the loneliness is intense, when others are discussing what schools their child is looking at for university…..Thank you!

  4. Indeed I do! When it really makes me mad I holler at him and tell him how mean he is and beg him to stop it. I rarely remember what all I have said but it has no impact. It’s just terrible.

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